Tag Archives: Family

Kodachrome

Start and stops, beginnings and endings.  We think about them a lot this time of year; as children complete another year of school.  Some move up, and some move on, forever.

Skylar is finishing her eighth grade year next week, and the moment she does, she’ll begin her journey as a high school freshman; literally the next day.  She’s enrolled in summer school courses to get the jump on her high school classes and start accruing some of those twenty-four credits she’ll need to graduate.  She’s only thirteen.  I often wonder how, and when we got here.
Skylar 2018

She has clear-cut ideas, plans, and dreams for her future.  She intends to begin collage courses her junior year of high school.  I’m proud to see her taking the necessary steps to begin accomplishing her goals.  And of course, in the midst of it all, I can’t help but ruminate on the effervescence that was Miss Elliott’s short life with us.

Who would she be today?  What would she look like, sound like, whose mannerisms would she have?  I’ll never know.  And it hurts too much to attempt to imagine.

In many ways these passing’s of time remind me how I’m still haunted by the words I spoke to Skylar one early fall afternoon; October 2nd, 2008 to be exact.  Buckling her into her car seat to set out for a day of fun, just the two of us in downtown Seattle.  She had just turned four years old.  The next day I was to be induced and Miss Elliott would be born.  I can still clearly see and hear myself saying to her,

“This is the last day it will ever be just you and me”

        How wrong I was.  How utterly, unknowingly, unfathomably wrong I was.  Back when I saw the world in nothing but Kodachrome.  It wasn’t so for me; not that what has been was any less magical or beautiful in its own way, just also heavier and more solemn than I would have expected.  For Skylar, I hope, as all mothers do, that she has many, many years of nice bright futures ahead of her.  I hope her world never stops glowing in the brilliance of adventure and possibility.  Mama will never be the one to take her Kodachrome away.

Give us those nice bright colors 
Give us the greens of summers
Makes you think all the world’s a sunny day

Oh yeah

 

When Love Dies Slowly

I’m going to call her, M.  I’ve known her for a long time.  When recounting the fallout over the ending of her marriage, something she never expected to happen in her life, M mentioned to me that she “holds space for those who held Space for her”.  I can’t tell you how much I appreciated this sentiment.  In the loss of our daughter I became a different person.  It all began with her terminal diagnosis.  In many ways I’m softer now.  I’m less rigid, more patient, but that wasn’t always the case.  For a while I was angry.  I was harsh.  I was unyielding.  I pushed people away.  Luckily, through it all there were those who were strong enough and committed to loving me through it, those who gave me time and grace.  Indeed, I hold space for those who held space for me.  M held space for me, and in the midst of it all she was fighting her own battle.  One no one around her knew she was fighting.

The themes of Grief, Love, and Life After Loss can stem form many situations, not just from physical death.  M found herself in a position dealing with all three of these in a way she never thought possible.  Like me, M tried to do her best to keep pushing forward in the midst of her situation without focusing on her grief, or on herself. She did everything possible to keep her carefully crafted walls in place.  The walls she had built to feel secure.  Slowly, but surely a crack emerged, and eventually her vulnerability began to show through.  Only then did she learn the way to make it through that grief was to face it head on.  Only when those walls finally came down did M find her freedom in not being contained by them any longer.

“What do I say about grief when it comes to the ending of a marriage? Lots, I say lots. There are so many layers and varied themes in my story…in anyone’s story. I’ll start with the backstory to give you some perspective, but I intend to focus on one theme throughout: grief. I come from a long legacy of lasting marriages. Both sets of my grandparents celebrated fifty years. and my own parents are coming up on that same milestone. I am proud of this legacy and had every intention of adding to it. So, divorce, when it came to my own marriage, was not in my vocabulary. It was unfathomable.

It all began when “good” Christian girl married “good” Christian boy. They had a huge, lovely wedding and went on what was to her, the most bewildering ten-day honeymoon. He barely touched her the entire time. She was baffled. Based on their belief culture, (read: they had saved themselves for marriage) she anticipated his response to being married would be sex, lots of sex, but strangely, that was not the case.

The pattern continued for the entirety of their marriage. Along with a lack of physical intimacy came a lack of emotional intimacy. He worked long hours, played online computer games, and slept more than most adults. They did not talk about feelings, he didn’t want to. They did not go on dates, he didn’t want to. If she asked for these things, or any things at all, he made it clear that he felt burdened and pressured. In disagreements she was always the one to take the blame and need to change to make things right between them. She felt like he was willing to throw her under the bus to get what he needed or just to be right. She did not feel valued by him, she did not feel like a priority in his life. They were not partners, and what friendship they had started with faded yearly. She felt she must be doing something terribly wrong. But, she kept trying to be the good little Christian wife. She would lean in, and he would pull away. She would lean in even more until she was worn out. He sometimes would give her just enough, just a trickle of love to keep her in the ring. She’d regroup and go again. She had committed herself before God, family, and friends that she would do this with everything she had. And, she was not a quitter.

Somewhere in there they got something right, and made two really amazing humans. She got busy being Mom, and that filled some voids in her life. Daily doses of affection can do amazing things for a person’s heart, so do appreciation, and fulfilled purpose. They can also help to mask other underlying issues, for a while anyway. Motherhood gave her all these things. She had hoped that her husband’s heart would be softened by the little people. Maybe it was, but there were no outward signs that it was softened towards her.

Right around the eleven-year mark, she started feeling something she had never felt before. Trapped. Desperate. She prayed a prayer to be released. Oh no! What had she done?! God certainly was NOT going to answer THAT prayer.  She re-committed herself to being the best little Christian wife she possibly could be. Guess what? It did not change things for the better. He detached even more. He kept rejecting her. He gaslighted her left and right (she just didn’t know what that was yet.) By thirteen years in, she felt another new thing: Done. She felt spent, drained, hopeless. Then, ugh, she found herself dwelling on thoughts of another man, a friend. What?! This was not her, not at all. She was shocked by herself. Of course she had been hit on before, flirted with by cute coworkers, even attracted to men who crossed her path, but never once had she considered anything romantic with any of those. She was NOT okay with this. It scared her. Once she realized just what she was doing, that her marriage was in such shambles that she’d even go there, she got herself into counseling.

She told her “good” Christian husband about all of it; about the other man in her thoughts, about the counseling, about the hopelessness and the brokenness of their marriage. He was blank, initially. He listened in silence with zero emotion shown. She made demands. He needed to get into counseling, and then they would eventually go together. He got angry as if her asking for him to get counseling implied that he held some blame. She could see it in his eyes: blame and contempt. Why should he go to counseling when she was the one with the problem? But he did go.

Right away counseling uncovered the landmine that decimated her heart and explained everything simultaneously. She was married to a sex/pornography addict. His counselor identified it in his first session, and he told his wife about it that same evening. Her husband said he was flabbergasted. How did the counselor know, she wondered?! Why hadn’t she known?! She was in shock. Waves of disgust and self-loathing descended upon her unexpectedly as she would go about her life in the days just after his revelation. The ick factor was huge for her. At their first joint counseling session, the female counselor, unprompted, identified his addiction as well. This time he was angry. Why would that woman say such a thing about him?! (Side note: men who regularly partake in pornography tend to objectify and undervalue women in general. Notice the difference in his responses to being found out.) As counseling progressed, he walked a fine line of rationalizing/defending his behavior and owning up to it. He did enough to look like he was working, but not enough to actually change. He had been addicted since he was fourteen. At this point he was over forty. It was his coping mechanism. It was his release, his escape. It was the most nurtured, and deeply hidden piece of his identity. It was one that needed to protect at all cost.

        She understood that no marriage was perfect. She knew one person isn’t solely responsible for a breakdown of this proportion, but by this time, all the deception and lies, all the rejection, all the detachment, all the holding his wife in contempt, they were all byproducts of his addiction. She could see, in hindsight, the signs that should have clued her in years ago. She was an unwitting enabler. When he blamed the dirty movies that would pop up in Netflix’s “recently watched” tab on a glitch in the system or the sweet teenage babysitter; that should have been a red flag. When she found Archie McPhee figurines posed in a variety of sex acts each time she and the kids would pick him up from work and he would quickly knock it off the shelf to keep her from seeing; that should have been a red flag. When he would turn down sex with his wife and then fifteen minutes later disappear into the bathroom with his phone for forty-five minutes; that should have been a red flag.

Again, she tried to be proactive, but after much counseling, studying, support grouping, separating, praying, and soul-searching, she decided she couldn’t do any more. She couldn’t fix this. She called for divorce. There was fallout…so much fallout. He blamed her and shamed her, threatened suicide, got angry, but never once took ownership of what he had done to their marriage. She was criticized by several people. She was shunned by a few. Her kids didn’t understand. Mainly, sorting through her own feelings was the hardest part. Guilt. Hope. Uncertainty. Smallness. Heartbreak. Grief.

Grief. The big one. Overarching all the feelings was her grief.
My grief.

        I was grieving my marriage long before my divorce. Or, I should’ve been
grieving it, because it was dying since the get-go. I don’t know if it’s the way I was raised, the way I’m wired, or the years of being objectified and undervalued, but I did not feel worthy of my grief. I did not allow myself to grieve. I would tell myself, “Hey, look around! There are so many people who have legitimate reasons to grieve.” I just got stuck with in a horrendous marriage. That doesn’t compare to losing a loved one, or a limb. He didn’t beat me. He was never blatantly awful to me, just subtly awful. Do you see that? That’s what I do. I minimize my grief. It was my coping mechanism. It’s too hard to feel. I don’t deserve it. My life is not hard enough for me to deserve grief. All told, my life is pretty good…if you ignore a few little moments here and there:

• a cross-country move leaving my childhood friend/sister behind
• rehoming a beloved dog
• a miscarriage
• rehoming another dog
• a fourteen-year long marriage that was empty, lonely, and devoid of affection
• grappling with my husband’s porn addiction and mental illness
• a divorce
• the loss of independence that comes with a smaller income
• watching my children’s lives be turned upside down

Don’t let me lie to you like I lied to myself. Those things deserve to be grieved. Along with the loss of love, the loss of trust, the loss of one’s sexuality and sexual identity, the loss of a plan or a goal. And sometimes, hard times bring the loss of friends. That happened too, and needed to be grieved.

        So, what happens when we minimize our grief? Give it a brief nod and then go on with life? What happens to that grief that doesn’t get acknowledged? That doesn’t get truly felt? I believe it eats us up in a variety of ways. I believe it can be responsible for physical ailments. I believe it can be responsible for the inability to move on with life in a healthy balanced way. I believe it skews our view of the world and of the people in it. When I minimized my grief, when I didn’t allow myself to feel what I felt it ate me up. Literally. I lost a large amount of weight quickly which, on my small frame led to other health issues. I lost sleep. I lost my temper. I lost my focus.

        My faith wavered. This was a first for me. Nothing had shaken my faith
before, and it was scary. Unresolved grief can weaken the faith. I mentioned the title “good Christian” several times. It’s because I am a Christian, and I try to be good. I really try. I love Jesus and He loves me. But, questioning the state of my marriage and my beliefs about marriage certainly made me look long and hard at my faith.

I eventually came back around…to the grieving. It took time. It took coaching and it took some really great counseling. It took me learning my worth. I did that by trying to see myself through God’s eyes. It took me humbling myself to realize that I am not strong enough to avoid feeling. I couldn’t stuff it down inside myself any longer. (Side note: Isn’t it funny how pride can make us feel unworthy and overly confident at the same time? That’s another discussion, though.) It took me learning that when the wave of grief comes crashing down on me, the best thing to do is ride it. To go with it wherever it takes me. If I’m driving down the freeway when looms the icky realization that he preferred online sex with airbrushed, silicone-filled porn stars over sex with his wife, then I will pull over and scream and cry if I feel like it. It’s okay. Feel it. Feel all of it, and feel it fully. It’s not easy, but it is necessary.

        Then what? Feel it all forever? For me, the waves gradually became smaller and more spread out. They still come sometimes. I acknowledge them, feel them. But, I don’t dwell. I won’t wallow. That gives the hurt too much power. I’m not sure I’ll ever be completely “over it.” My filters have certainly changed. For instance, Hugh Hefner’s recent passing was a personal trigger for me. Previous to all this, I would have hardly noticed. I certainly did not grieve him, but how he is praised for the legacy he left behind sure did a number on me. It brought a wave of pent up grief and unresolved anger crashing down on me. I still get triggered, which usually brings one of these waves. The difference is they’re manageable now. I no longer need to pull over on the side of freeways to scream-cry. And, the grief no longer fills me. Since I’ve learned to let it pass through, the space it took up has been freed to hold other things. Joy. Love. Wonder. Patience.

        And where is this “good” Christian girl now? As I said, I am divorced. It was the hardest thing I’ve ever done. I wouldn’t say it’s like pulling the plug on a loved one who’s brain dead, but it shares these similarities: technically my marriage was still alive, but in all respects other than technicalities, it was dead. And, I had to let go of the hope I had held for so long that it would eventually be what God had intended marriage to be. So, now I have found happiness again. I put all the weight back on, and then some… My kids are okay. I am remarried, happily so. I am married to a man who understands grief and feelings and intimacy. He’s faced his own losses, dealt with them, been honest about them, felt all the feelings, and grew from them. He shares his struggles with me. I feel safe sharing mine with him. We verbalize that we have it as a goal to talk about whatever we need to talk about, to stay connected, to be partners, to be lovers, and to be friends, to hold each other accountable, and to keep our faith as the keystone of our marriage. It’s a very good thing. It is real and honest and ugly at times, but that’s how I believe it’s supposed to be.

Halcyon 1

        A word about pornography: For me, pornography was a betrayal. It was an act of infidelity. It was secrecy and lies. It was cheating. It went against everything we “good” Christians believe and hold virtuous in our marriages. But, ultimately, it was my now ex-husband’s unwillingness to recognize this that lead to the demise of our marriage.”

For more information about how pornography use kills love, please visit fightthenewdrug.org

Running Away and Joining the Circus (and Finding Myself in the Process)

I first met my dear friend, Shelly Ogden in the most unfortunate setting; the hallway of a hotel in St. Petersburg, FL after our first session of the NTSAD Annual Family Conference in 2010.  We were both attending for the first time.  Miss Elliott, who had infantile Tay-Sachs and Kaleb, who had infantile Sandhoff were nearly the same age, and had both recently been diagnosed.  What I remember most clearly is Shelly stopping me in the hallway and telling me that she just wanted me to know that I was saying all the same things in that session that she was feeling, but couldn’t bring herself to say.

The thing about living with these rare diseases, and impending loss is how instantly, and how intimately the bonds we parents forge are.  Both Miss Elliott and Kaleb died in 2012, and while Miss Elliott died in February, Kaleb died on October 3; Miss Elliott’s birthday.  Shelly texted me early that morning to let me know that Kaleb must have wanted to go be with her to help her celebrate.  I was gutted for her.

And the thing about outliving your medically fragile child, is that in many cases you’re suddenly, nearly completely lost.  When your everyday life revolves around continuous care, medications, positioning, appointments, therapies, etc., the silence can be deafening.  Constricting in your lungs like a lack of air leaving you writing in pain, desolation, and despair.

As Shelly shares below, though she couldn’t run away from the pain she was feeling, she was desperate to find a reason to be, and to find meaning, and value in her life.  She was desperate to find Shelly again.  And she did so, by looking in the last place she would have expected to go searching:

“I ran away and joined the circus after the death of my son. Okay, not really, but let me explain. Kaleb had infantile Sandoff disease and died just eight days after his fourth birthday. Grief can consume you, especially when you are grieving the loss of a child, if you let it, and I was determined that I was not going to let it. I never wanted my surviving child, Christopher, to feel like his life was less important, so I decided to show up for him, and continue to live for Kaleb, who didn’t get that chance. Even when I didn’t want to do it. Even when it was a struggle to make myself do it. I owe that much to the rest of my family – and also to Kaleb.

Ogden Family

      After his funeral, when family went home, and Dave went back to work I had nothing. I felt lost. I felt like I was wandering without a purpose. I’d go window shopping to kill time but even that was too hard. I’d see a mom walking with her son and I’d literally have to run out of the store or risk breaking down in front of everyone. I then found myself making daily trips to the cemetery because that is where I felt close to him, and because I couldn’t stand being inside our empty house. On my way back from one of those trips, I stopped into a women’s only dance studio and bought a membership. I decided it was time to start taking care of myself. I thought I’d start off easy and attend an aerial yoga class, but when I got there, the instructor warned me that what I was about to take was an aerial silks class. I was already there, and I didn’t know the difference, so I decided I’d stay.

Little did I know what I was in for. I am a retired law enforcement officer, and I’ve been through some tough training but this class was the most physically demanding Shelly Aerialthing I’d ever done. First and foremost, I am afraid of heights which was a challenge. The silks physically hurt my feet, and my forearms, hands, and biceps felt like they were one fire. My entire body was screaming, but for one hour I found that I could focus on something other than the pain in my heart, and that was an amazing feeling. One thing I have discovered, as I dove head first into the world of circus arts, is that the more I learn to “fly” the closer I feel to Kaleb, I no longer feel the need to visit the cemetery every day.

The friends I have made in the aerial world are some of the most supportive and caring people I have ever met, and they’ve changed the way I look at a lot of things. My first instructor, Jessie, played such an instrumental part in my healing process. There are countless times when she would sit with me and just let me cry on her shoulder, which was very therapeutic. She’d encourage me to join class when I was ready during those difficult days where I felt like I was constantly on the verge of tears, and I always felt better out of class.

This past August, I asked my current instructor, Lauriel, to choreograph a piece for me to Danny Gokey’s “Tell Your Heart to Beat Again”. I told her I wasn’t the kind of person who could perform in front of an audience, but I wanted to record this piece and post it on social media in honor of Kaleb’s angelversary. I explained that this anniversary would mean that Kaleb would be gone, longer than he lived. What she came up with was even better than what I expected, and was packed with so much emotion. I was so proud of what she had done and when I finally got it recorded we sat together hugging each other and crying. The release of having finished it, was more than just finally recording the piece, but the emotion of the song and the action that was put into the routine all hit me at the end.

I have always been the quiet observer, the wall flower if you will. I like to see everything going on around me, but I prefer to stay out of the lime light, until recently Shelly Circuswhen Lauriel talked me into performing. I stepped out of my comfort zone and become a performer equipped with identification that titled me “Talent”. So, for one night, I joined the circus, and the spotlight was on me. It was oddly both terrifying and exhilarating at the same time. I was bolstered by the fact that my oldest son and husband were in the audience to support me and I know Kaleb was in the air right next to me.

I’ve decided to continue to live even when my world has been turned upside down. It was a choice I had to make, and it didn’t come easy. Some days the grief is crippling, but I think about the life Kaleb had to live, one that left him paralyzed, in silence, tormented by seizures, unable to enjoy the taste of food, and he reminds me, if he can do that, I can do this – I can live fully and honor him. I have discovered that in order to navigate through life after the loss of a child you have to find your “thing,” your passion. My faith gives me hope, my family gives me a reason, and my aerial world gives me wings.’

“There is freedom waiting for you,
On the breezes of the sky,
And you ask, ‘What if I fall?’
Oh but my darling, what if you fly?”
Erin Hanson

 

Love Them and Let Them Grow

“If I know Becky,” my dad says, “she’s going to spend the next two weeks saying to herself, ‘Is she ok?  Is she having a good time?  Is everything going alright’?  She needs me!  And if I know Skylar,” he continues, “she’ll just be having a great time, being the life of the party, leading everyone around.”

He’s right.  On both accounts.

It’s day one of her two weeks at sleep away camp.  I miss her.  I was on the verge of tears last night as she’s never been away from home this long.  I am thinking all those things my dad said I would think.  I’m also wondering how I get through these two weeks without her.  I always do.  I’m a worrier.  More accurately, I’m a planner.  I like things orderly and under control.  I like to be able to anticipate the next move.

One common theme I hear from many parents who have lost a child is that they don’t sweat the small stuff anymore.  Problems no longer seem so big, so daunting.  Not after the unimaginable loss they’ve suffered.  I wish I could say that was the case for me, but conversely, it had just seemed to make me into someone who now finds themselves acting neurotic.  Suddenly everything seems to be an issue.  Little things feel like big things.  I struggle to keep every moving part in its place.  I want consistency.

Some parents of child loss have told me that they actually find they are distancing themselves from their children.  It’s a psychological need to guard their hearts.  Hearts that can’t handle another loss like the one they’ve already suffered.  A preemptive attempt to soften any oncoming blows.

I understand this thought process. My reaction after the loss of our Miss Elliott, however has been to grip everything tighter.  To hold on a little longer.  To savor every second, even after it’s gone.  Feeble, I know, but nonetheless, if I could will time to stop I would never let another second tick by.  I’d live in this current moment forever.

The struggle is to find balance.  I haven’t (yet) let the neuroticism take over.  I actively try to make sure that I’m allowing her to grow and thrive, and experience life on her own terms…well, sort of.  Evaluating every day to ask myself; was I too strict, too permissive, etc.  What’s the magic formula?

My husband tells me it’s the worry that let’s you know you’re a good mother, because really, when you break it down, worrying (within reason) just means you care.

First Day

First day of kindergarten, eight years ago.  Ready to take on the world from day-one.

 

She’s strong and outgoing, and like my dad said, she’ll probably be running the place by the time the week is out. We joked that there’ll be no tearful phone calls home in the middle of the night asking us to come pick her up.  And I’m proud.  Proud of her strong will, gumption, and tenacity.  Proud of her unbroken spirit, outspoken opinions, and every-present resiliency.

After the summer she’ll be going into eighth grade.  I only have one more year until she’s in high school.  How did it happen?  Where did the time go?

The most important lesson my parents have taught me that carries over into my own parenthood is just to “love them”.  In the end it’s the only thing you really do have control over.  Just love them, and let them grow.

 

 

A Grieving Parent’s Growing Pains

“Good night”, she said.  “I love you.”

“Good night.  I love you too my sweetheart”, I replied.  I was reading on my bed when she came in.  I watched her walk away and marveled at the amazing young woman she has become.  And I questioned how it happened, when.

I blinked and here we are.

We spent the weekend attending various graduation parties.  Life is in full bloom for these new young adults.  Their wide eyes begging to take on everything in sight.  The increasing pace of their beating hearts palpable to anyone near them as they overflow with the anxiousness to take that first step in their new journey.  Laughter and joy abounds.  Their parents, an incompatible mix of immense pride, yet also the lingering pangs of sadness over that fact that they will soon be leaving, the fact that they are no longer needed the way they once were.

“Five years and we’ll be here ourselves”, I tell my husband.  I can hardly believe it.  Just stop I plead with Time.  Just wait.  Just give me a little longer.  Where did it go?  Was I even present for it?  I can’t remember it, I think to myself.  Where was I?  What was I doing?  When had she stopped being a little girl?  Have I done enough, taught her enough, instilled in her our values so she adopts them as her own?

I become misty eyed, feeling like every mother must, in losing my little girl to womanhood.  I know my time with her is limited.  And I know that she, like every other child who grows up, must want the freedom and ability to experience life on her own terms, too.

Then, on the other hand, I’m grateful for every bit of it because she’s growing and flourishing.  When I look at her, I see all the same magic and inspiration I see in the eyes of those graduating seniors.  And I want her to have every bit of goodness and opportunity the world can offer.

I try my best to prepare her.  I’ve never wanted to fill her head with fairytales. I tell her it will be hard, she’ll have to fight for what she wants, push through her trials, and to neverSkylar take a back seat. I encourage her to pursue her dreams, with the understanding that being smart, while she is (astonishingly so), isn’t enough on its own so she knows she has to be willing to go out there and go after what she wants instead of sitting around waiting for it her find its way to her.

As much as it pains me (but of course I’m proud of her and happy for it) to see my child changing before my eyes; becoming her own person, blossoming into a being all her own; not needing me, I know that the alternative is far worse.  I know from experience.  And there is deep sadness.  The hole in my heart reserved for our Miss Elliott, gone more than five years now opens a little wider in these moments.  In the undeniable moments that reaffirm each time we live through them that there will never be these milestones and celebrations for her.

I will never know who she would have grown into being.  What she would have accomplished.  Whose lives she would have changed.  She will always be three years old.

As the gap between my girls continues to widen exponentially, I can only hope she will carry her sister’s memory with her as she navigates the roads of life.  When she has no siblings at home to share secrets with, fight with, turn to, or champion one another I can only hope that in her heart she feels a connection to her sister and knows she’s not an only child, even if she has to live this life as one.

I hope she will use her loss to propel her to reach new heights in both love and life.  I know that she is by far more compassionate and understanding of others and their own plights, at such a younger age than she would have otherwise been.  And while I would have never asked to place this burden on her, as a grief counselor once told me:

“We must be good stewards of our grief.”

     In that spirit I will not wallow in my sadness,  I will not stunt her own growth and development, but I will use it to further advance my daughter’s dreams and aspirations as she grows and matures, to the best of my ability, in honor of a beautiful life cut far to short.  In honor of the live I have, and always will for both my beautiful girls.

Pain, Power, and Finding Love on A Mountain Top

       McKenzie Johnson is someone to look up to, though she, herself would be uncomfortable with the moniker of role model, it’s true.  I admire so much about this woman and what she has overcome in her life.  A grief counselor once told me that we need to be good stewards of our grief, meaning that instead of allowing it to swallow us up and tear us down, we can use our experiences to help others facing similar trials. And likewise, Mac is a good steward of her pain, even through the struggle of overcoming addiction. 

       In my opinion it’s the individuals who have been through various forms of hardship who have the most to offer.  It’s one thing to live your whole life on top, but it’s quite another to be writhing in the depths of despair at some point, and to choose to claw your way up to the top instead. That’s just what Mac does, every day.  She literally climbs mountains, and somewhere along the way she found her voice, herself, and even though she wasn’t looking for it, she found love. 

 Mac2

       “Just over a year ago I wrote my first guest piece here, Numbing the Pain.  In the past year a lot has changed, and a lot has stayed the same.  My mom still has cancer, I am still in recovery, I still find it hard to show emotions to those closest to me, my past still haunts me from time to time. I have climbed Kilimanjaro; and found love doing so, I am building a home, I have become an aunt, I have left my job for the time being. I have stepped into many unknowns, and all my expectations have been blown away, like they usually are.  

       I was reading an interview with Pamela Abalu and her parting statement was, “fear is imagination used for the wrong purpose”. How true that is.  When you have a loved one with cancer, and you yourself have the disease of addiction, there is a lot of fear. In fact, I think fear drives us all in ways we may not even realize.  After almost five years of being sober my fears have evolved from say, wondering if I would wake up the next morning, to am I enough, have I done enough, am I treating my loved ones in way that I am proud of, will anyone find out that I am making it up as I go along? 

       They say addiction is a family disease, and it’s true, I know it from experience.  I know now the many ways in which this disease of mine affected the people I love most. And I only know this after finally being forced to acknowledge it in treatment. I would say cancer is also a family disease, affecting all those around the one with the symptoms.

       Mom has always understood me as a being, knowing things about me before I was ready to acknowledge them myself.  In my teenage years, before I was an active alcoholic, I was deep in an eating disorder, anorexia and bulimia.  One day she pulled the car over in our neighborhood, looked me straight in the eye and said, “I know what you’re doing to yourself, do you want help?” I said “Yes,” I still see my therapist she found for me.  The same one who many years later would look me straight in the eye and say “You would benefit from inpatient treatment.” And I did.  I see her tomorrow.  Mom would hand write me letters in college, saying that if I ever needed help with drinking that they were there.  I would throw them away.  I wish so badly I had one of those now.  Mac6Mom is the type of person who if I cry, she cries, and not just because I’m her daughter.  She’s most empathetic person I know.  She will move mountains for people and causes she cares about.

       She is soon to start her fourth treatment in five years, this time a deadly yet potentially curative cocktail of chemo, immunotherapy and a stem cell transplant.  There is nothing easy about what the next six months or more will have in store for us. There is nothing to really prepare any of us.  There have been days where I thought I would implode. Around treatment time my depression and anxiety flare up, my thoughts of alcohol increase, fear is a constant companion. Work has been hard to manage, a new relationship has helped so much although has its own stressor of distance.  But the process for me this time has been different; I have been more present, going to appointments, helping make decisions, telling mom the sometimes-hard truth that she does not like to hear, and looking at things from a different perspective.  I’m focused.

       Sometimes, the closeness of others and the reality it brings is still difficult for me to swallow so I show my love in different ways, like raising (a considerable amount of) money for the Leukemia Lymphoma Society again this year through the Big Climb.  Events like these help me to channel my energy and desire to help in a positive and productive way, as much for myself as for the one I’m helping.  I cannot say that I am a natural caretaker or the best person to be at your bedside, but I am a good decision maker, can ask hard questions and maybe push my mom a little more in areas others wouldn’t, just as she’s pushed me. She can be tougher than she knows.  I’ve learned that I can be, too, but I still won’t cry in front of her.

       In being more present for my mom and family, work has seen me through more than a few breakdowns recently. Again, being vulnerable in front of people who are not my loved ones is far easier for me than showing those who should be closest to me what I am feeling.  I run a team that does over a million dollars in sales a year, I was assisting on teams doing over six million a year before I got my own.  I have always put immense pressure on myself to be the best at everything I take on, my therapist would say I am a perfectionist, and I am not ok with being “ok”.  I have a hard time saying “no,” and an even harder time asking for help. That’s part of the reason I climb.  To get my mind frame out of focusing on the constant pressures I inflict on myself, to get out of my head, to just breathe. 

Mac5

        Having a partner to balance and support me, to point things out that I miss, to have a different outlook on things; a healthy perspective has made a world of difference.  I know that I should not go through this alone, but I have a disease that wants me to isolate, that will creep in through any vulnerability.  If I have learned anything in recovery, it is that we cannot do it alone.  This time I didn’t.  I asked for help, maybe a little too late after one too many things were put on my plate, but I did and I am proud. 

       The last and only other time I took a significant amount of time away from work was when I went to treatment for my alcoholism.  All in all, I was there for five and a half months. I then chose to live in the nearby community for a few months after that.  It was the best, and hardest decision I have ever made. If you would have asked me a few months ago what could possibly take me away from work, my answer would have been, The Pacific Crest Trail or travelling the world for a year, but what has taken me away is that I am taking this time to take care of myself, and my mom.  I don’t want to have to go to treatment again, I never want to have to tell my family I relapsed.  I have a constant fear of this, and it is  truly terrifying for me.

       I was never the little girl who dreamed of finding a husband, getting married, and having kids.  I have always been independent and self-sufficient, almost to a fault, living my life in near protest of it, almost as if I had something to prove.  Or maybe just something to hide. I always knew that if I did happen to find that person it would have to a partnership, and someone who understood my independence, wasn’t scared of my past, could live with my current lifestyle of not being around alcohol, could draw my thoughts and feelings out, allow me to cry, to be the tough one, to celebrate my success and not be intimidated by it, make me want to share my life, and let me climb the mountains I love so much. 

       I found him, on the tallest mountain in Africa.  When we first met I thought he was handsome, kind, quietly confident, self-assured and aware, and I remember not being able to tell how old he was.  Over the next few days I was stuck by his patience, his ease with the locals, culture and language.  He led our group of four incredibly independent, strong, wickedly funny, successful women without so much as breaking a proverbial sweat.  We were on the mountain for seven days. He later told me he knew he loved me at camp two.  But at camp two I was busy trying not to let my feelings show, maybe so I didn’t even have to acknowledge them myself. That day we all took a popular little side trip from camp.  It was very busy and I was having some anxiety being around so many people, and the hike made it worse, I think he noticed that.  When we returned to camp I heard him say to another guide, “I’m going to take her on a separate hike, she’s very active.” That awareness and kindness wasn’t lost on me. Our little hikes became a theme for the rest of the climb.  This is where we really got to know each other, just the two of us, on little side trails on Kilimanjaro.

        Mac3After the climb, we convinced him to join us all on safari.  Following that, we both happened to have tickets to Zanzibar, so there we were able to spend our first time alone together. I have never had something feel so easy, right. In the following months, that has not changed, though so many things have not been easy.  He was working and living at Crystal Mountain, me in Seattle. And now he is in Alaska, and me, in Seattle.  But he has never once shied away from me, as I have with him, first because of our age difference (he is considerably younger than me), then distance, then because anytime I let someone get close, I try to push them away.

       I know I am clearly still struggling with my ability to be vulnerable and at times I have even been willing to lose something that I care about so much because of it.  That part of me has never made sense, and I am working today on why I can’t get over this wall or break it down.  This is a theme not only with my partner, but family as well.  I am never easy, add in my mom’s treatment regimen, the usual family dynamics, significant distance in a brand new relationship, all the opposite of easy. Yet he has never wavered, showing me his emotions, love and support all along the way, and not only for me, but for my family as well. I love him enough to cry in front of him, to ask for his opinion when making big decisions, to make us a priority, above myself. He gives me another reason not to drink, not to stay in my depressive tendencies, or act on them. He may not have experienced anxiety, or any of these other issues personally, but he cares enough to stand by me through them. And now I can let him which to be quite honest, feels foreign and scary and certainly does not come naturally. Just as I have to work on my sobriety, myself, my mental and emotional well-being, I have to work on allowing someone to love me, as I am.  And believing that they will”

 

All photos courtesy of McKenzie Johnson

A Five Year Study in Grief

This last Friday marked five years since our daughter died.  Five years.  Five years?  Sometimes it’s so close to the forefront of my mind that it overtakes me.  The reality of it weighs me down and my mind spins out of control.  Other times I can’t put my finger on it being factual at all.  It’s surreal.  It’s visceral.  It’s confusing, and overwhelming, and still unbelievable.

Each anniversary of her death seems to strike me in different ways.  I never know how I’ll feel as the date approaches, but usually I’m OK.  This year I wasn’t.  I’ve come to realize the physical toll grief takes on me.  And every year at this time I get sick.  Headaches, fever, sore throat, sometimes vomiting.  My symptoms seem to run the gamete, but no matter what they may be their cause seems to be psychosomatic.

Realizing this feels like a big step in helping myself mitigate these factors, or rather it should, but I’m not always able to mind-over-matter my way through them.  Sometimes, usually in the week leading up to February 3rd I’m susceptible to them despite my best efforts to stave them off.

This year I cried.  A lot.  I felt an overwhelming sense of impending dread.  I felt weighed down and unable to perform the most mundane of tasks that day.  My mind swirled.  It was scattered.  I paced in circles throughout the house without reason.  I lost my breath and suffered a panic attack.  I prayed.  A lot.  I just couldn’t seem to be still or calm.

I granted myself these moments, moments I usually deny myself, to let it out, to feel my pain and sorrow.  To be human.

It’s been so long since she’s been gone, much longer than she ever was here, that sometimes it’s hard to remember what our life with her was like.  The fact that our life with her was all-consuming doesn’t change that fact.  The fact that our life looks so drastically different now only makes it harder to connect to what it once was, in my mind.

Loren left for work, but not before asking if I was ok.  Unable to put a brave face on this morning,  “Just sad,” I told him.  “I know,” he responded.  He told me he loved me, kissed my forehead, and recounted that he was so in tune with my stress that he can always tell if something’s off.

An hour later I called him for no reason other than to hear his voice.  I needed his comfort.  He assured me he could come home if I wanted or needed him to. Gathering myself I declined his offer.  I was determined to get through this day without further disrupting it for anyone else.

I forced myself to shower.  It took a long time to go through the motions.  I dressed, and eventually went outside to once again shovel the drive as it had now been snowing heavily all morning.  It needed to be done, regardless of what day is was.  The weather didn’t care.

In the midst of my shoveling effort my brother pulled up.  He stepped out of his truck and presented me with a bouquet of pink and purple carnations.

I cried again.

Skylar texted and asked me to pick her up after school and go to the orthodontist because the wire on her braces had shifted and was sticking into her cheek.

Life keeps moving forward.

As she opened the door and got in the car after school she too asked if I was ok.  Crap, even she can see it on my face, I thought.  I’m normally much more adept at masking it.  “I’m ok,” I lied.  I’m sure she didn’t believe me.  I struggle with wanting to tell her what day it is for her to share in remembering and honoring her sister, and vice versa to shield her from feeling the sadness I feel on this day if she doesn’t already realize the significance of the date on her own.  I didn’t mention it further.

At the orthodontist’s office I waited while she went back into the ortho chair.  I was the only one in the waiting room at this time, except the receptionist at the front desk.  Once again, preoccupied with my own issues and becoming overwhelmingly emotional I began to cry.  Noticing my obvious breakdown the receptionist came over to ask if I was ok.  I lied again that I was fine, but it was a pretty poor performance so she leaned in to give me a hug.  I apologized.  I wasn’t necessarily sorry for making someone else uncomfortable, just for the fact that I was causing a scene and let my emotions get the best of me in public, which I am usually able to contain.  I told her today was the anniversary of my youngest daughter’s death.  She began crying as well and told me that her son died in June.

And there it was.  I don’t have the market cornered on grief, even though I had been wallowing in my own loss all day.  At least I knew she understood and didn’t think I was crazy.

Skylar came out.  We finished up the appointment, and then the receptionist told her they were having a game that day.  She told Skylar she could win a prize if she threw the beanbags through the hole in the board she was holding.  Two out of three in and Skylar won a pair of movie tickets and a t-shirt.  She was ecstatic.

A friend texted with her remembrances of Miss Elliott and commended me on always carrying myself with such grace in light of my loss.

Ha. Not today.

It wasn’t until later that I realized I hadn’t seen the staff at the ortho office offer this game to any of the other patients as they left the office that day.  The receptionist had just been exceptionally kind due to my emotional distress.  It reminded me that it’s ok to be human.  It’s ok to show my feelings of sadness and grief.  As uncomfortable as it may make me, sometimes it’s necessary to let it out.

By the time we got home my eyes were blurry and stinging so badly from all of my crying that out came my contacts and I wore my glasses for the rest of the night.

Walking in the door my husband tells my I’m beautiful.  I laugh at his seemingly horrible judgement, but he means it.  He truly believes it.  Even in that moment with my red, puffy, makeup smeared eyes. He loves me fully; in spite of my flaws, mistakes, and the ways I’ve let him down over the years.  It reminds me that even through the ups and downs, even in the midst of grief, being here at home with the two people who mean more to me than anyone else in the entire world, the only two other people who can share in this level of grief, as intimately as I can, is all I need to get by.

 

Breaking with Tradition

Four Christmases.  That’s how many we’ve celebrated without our sweet Miss Elliott at home in our arms.  She remains now, only in our hearts and memories.  A life remembered becomes a culmination of ever changing milestones from the moment your loved one passed.

In church yesterday our class leader asked the group about their sense of time, and how they measure it.  Nearly everyone gave examples of moments like x amount of time since graduation, x amount of time since we were married, x amount of time since my children were born, etc.  I remained silent, but in my head I whispered to myself; four years and ten months since our daughter died. 

I whispered this in my heard for several reasons.  One, the more time that goes by people  seem to know your answers to questions like these before you speak them.  They already know you’re the lady whose daughter died.  Furthermore, they don’t like to be reminded about it. Second, it’s also so solemn that I wind up not wanting to bring down the group, so-to-speak.  And third, I worry that when I speak these things aloud people will think I’m looking for sympathy, which I am not.  You learn over time, that outsiders don’t understand your loss or grief and you tend to keep it closer and closer to heart.

Our society does not want to grief to be something brought out of the shadows that they have to face.  They’re much more comfortable knowing, somewhere in the recesses of their mind that although it does exist, for others, they do not what to come any closer to its unpleasantness.

Milestones of any kind for those who’ve experienced a loss can be overwhelmingly emotional.  The holidays tend to amplify these for many people.  We developed our own new traditions to incorporate Miss Elliott’s memory into our holiday routines. Things that made us feel happy and were right for our family.  A way to honor the fact that we are still very much a family of four, even if Miss Elliott isn’t physically present with us.

One of these new traditions was to set up our Miss Elliott Tree.  A little white tree, lit with white lights, covered in pink and purple ornaments.  Miss Elliott’s favorite color was pink.  Thought she would eventually become blind, lose her mental and cognitive abilities, and never spoke a single word due to being born with Tay-Sachs disease we knew it was her favorite because her older sister, Skylar, five or six years old at the time assigned it to her.

For the last four Christmases we’ve made a point to purchase new ornaments for the tree each year, and Skylar has even taken to setting it up in her room.  We would carefully unwrap each of these special decorations and hang them thinking about how they represented Miss Elliott and her memory.

This year, after Thanksgiving we finished up our traditional tree in the living room, a tree trimmed entirely by Skylar for the first time this year.

“Let me do it.  I think I know where you want the ornaments and how you like them,” she told me.

Now in seventh grade and on the verge of teenagehood Skylar has watched me carefully place each of the perfectly color coordinated and themed ornaments over the years and wanted to try her hand  – on her own.  I agreed, and she did so with perfect execution.  It’s wondrous watching her grow and evolve into her own autonomous being.  A touch of myself, a touch of Loren, and wholly her own person.

“What about the Miss Elliott tree,” she asked?

“You know, I just wasn’t going to put it up this year,”  told her.

“Oh.  Are you just done with it, then?”

“I think I am.  How do you feel about that?”

“I feel done with it too.”

We told Loren about our decision, and he agreed.  That was that.  None of us felt the need or desire to set up the tree any longer.  It had served its purpose for us during those first few difficult years after losing Miss Elliott.  I don’t really see it as any sort of advancement through grief with this fifth impending Christmas since her passing.  I don’t like that kind of terminology because it denotes that one day we will stop grieving her loss.  As if grief over losing your child were something to move past.  That there is some sort of end point to it. Rather, like most things our ideas and feelings about it have changed over time, and continue to evolve year after year.

fireplaceMiss Elliott still holds the same place within our hearts that she has since she was conceived.  And her memory is still cradled just as softly there as when she passed.  We honor her life in so many ways, but we no longer felt beholden to this tradition to do so.  The little white tree decked out in pink and purple isn’t something I needed to utilize in order to celebrate anymore, and that’s ok.  I still continue to hang four stockings over the fireplace.  To me, it’s a reminder that we are, and always will be a family of four.  I cherish this thought and it makes me happy when I look up and see the four of them hanging there together. In a very small way, it gives me a sense of peace.

If you are grieving a loss this year I hope that wherever you are on your journey you find traditions that are right for you and your family.  Ones that help you have a little peace in your heart and add joy to your holidays.  Whether that mean keeping up time honored traditions, putting them to rest, or discovering new ones altogether; there are no wrong ways to celebrate your loved one.

 

 

 

 

Grief Doesn’t Die

Memes and GIFs are two words that came out of virtual obscurity…literally, in the last several years and are now household words on the tongues and lips, assuming you can correctly pronounce them, of seemingly everyone in America.  Pop culture and the world of the internet have wedged their way into every detail of our lives for better or worse.

Almost daily I find myself and my husband or friends texting these quippy little quotes back and forth to each other.  Some are just either so profoundly fitting in a situation or, more likely, just incredibly funny.

Of course you can find memes, often comical or at least satirical, to suit any situation; political issues, to family gatherings, workplace frustrations, etc..  But sometimes there are those meant to speak to the deeper feelings we find ourselves dealing with when words of encouragement are needed.

As the mother of a child who has passed, I see a lot of these posted on Facebook, Instagram, and even Pinterest from others who have traveled the same road I am on myself.  And occasionally I post them too.  Once in a while one comes along that just speaks so clearly to how I’m feeling that it feels like it could’ve been taken from my own personal experience.  I guess before the modern day meme came along this duty was reserved for song lyrics sang (specifically to us) over the radio or the occasional Hallmark card – sent via snail mail, of course.

All too often though, I find that while the sentiment may align with my feelings, the execution is lost on me. A metaphorical ball metaphorically dropped, if you will.  I recently ran across one of these little posts which proclaimed that “When you can tell your story without crying, that’s how you know you’ve healed”.

meme

Now, “healed” is a relative term to varying personal degree for everyone.  While it may be true for some, no blanket explanation could ever cover such a wide ranging, deeply emotional, and profoundly personal topic. I just want to say to the thought expressed in these seventeen all-knowing little words:  bullshit.

If this has been your experience and you have gotten to this point, I am so utterly happy for you and I encourage you to celebrate the place you’re in in your journey and the accomplishment you’ve made.  Hopefully the peace that encompasses it is a blessing to you in your stay.  I can only account for my own experience, of course, but what I can say about my journey is that the absence of tears runs so much deeper than being considered healed at the lack of their presence.

I will never be healed of the loss of my daughter  Not in the conventional, physical sense anyway.  Not until my time on this earth comes to an end and am I reunited with her in spirit.  Until that time, I am forced to wander around broken, like may of us are.  Shattered like a mirror due to myriad circumstances we’ve encountered and endured.  No matter how well you glue the pieces back into place the evidence of the break remains a part of the structure forever.  The mirror may be reconfigured, but it will never not be broken.  Broken is not bad or wrong, it’s simply the sum of the experiences that have taken you to become the person you are today. With rich experiences, both good and bad, we’re all weaving the intricate tapestries that are our lives.

Does that mean that healing cannot happen?  No, it doesn’t.  For some it may.  Yet others may unsuccessfully or unwittingly chase it for the duration of their existence.  Some may simply adapt to the new being they have become.  And still many more find their new identity in the pieces of their life and spend the remainder of it romancing and nurturing their newfound brokenness, essentially becoming its prisoner.  All of this in both positive and negative, healthy and unhealthy ways.  It’s just that tears are not necessarily the barometer of health.

Not expressing tears for me, simply means I’ve become accustomed to my situation.  I am used to it.  There is no longer any shock or novelty in child loss in my life. I am desensitized to the idea of what most people would find too horrific to even entertain in their mind, i.e. the “I can’t imagines” because I have already lived it.

It’s simply another form of survival.  It’s part of how I mitigate my pain.  I have many wonderful aspects of my life to focus on, though they still doesn’t lessen the pain I feel in her loss.  I just refuse to let that pain swallow me up.  I can’t well up and break down every time my daughter’s name is mentioned or someone asks me how many children I have.  In every part of my life; my job, my writing and speaking, my social relationships, my daughter, and her death are front and center.  Not only would it not behoove me to break down at every retelling of her life’s story, but (for me) it wouldn’t honor her, either.  I just don’t let tears overtake me.  That doesn’t make me any more or less healed than anyone else.  It’s simply a personal style of functionality.

I carry on with my life.  I am happy, healthy, and productive.  I tell her story a hundred times in a row and don’t shed a single tear.  And yet, not always, but from time to time I may well up at the site of a dress hanging on a sales rack that I wish I could buy her.  Or I pause to catch my breath whenever a particularly difficult hymn is sang during church services.

Grief and pain coupled with crying, though certainly not mutually exclusive, are not necessarily married to one another either.  And with a situation so personal, so devastating, who is to say that everyone I interact with is worthy of my tears?  For me, my tears are an intimate expression of my love for my daughter, and something that I’m accustomed to compartmentalizing, not sharing openly.

When it comes to grief, of any kind, please don’t oversimplify these nuances by applying generic thoughts on such a complex topic.  There is no handbook to reference.  There is no cookie cutter for grief.  Someone may not be meeting what your expectations of grief are, but that doesn’t mean that they should adjust their expressions, barring physical and mental harm, of course.  More likely it’s an adjustment of expectations of those grief expressions, and a more open discussion that’s required for deeper understanding.

Most importantly, just be kind and supportive.  Offer a listening ear when needed, and don’t feel that it’s your duty, or even within your power to ‘fix’ them.  Just allow your friend, coworker, or family member the time, space, and respect to grieve in the way that’s comfortable for them.

I encourage you to share you thoughts on what your personal barometers of healing have been in your own life, in regard to any event you’ve experienced. Let us come together to transform
the ideas of what both grief and healing look like to the world outside our doors.

Better Than Me

“She’s beautiful!” they tell me.  And I know she is, not just in my eyes, but by all conventional American standards, she is.  Chestnut eyes, straight nose, high cheekbones, supple lips, long flowing dark, but sun-kissed hair, and easily tanned skin.  She’s gorgeous.

“She’s a mini you, gorgeous like her mommy”, they say.

“Daddy’s got his work cut out for him,” they continue.

“Hope he carries a bat”, it goes on.

And it’s fine. I beam with pride at the shallow, and ultimately meaningless compliments, like any other mother would.  But she’s so much more than that.  And that’s the true, total package.  She works hard, brings home straight A report cards.  Is artistic, and creative, and thinks outside the box.  She’s a friend to everyone, caring, compassionate, and thoughtful.  Easy going, quick to lend a hand…obviously I could go on and on.

Skylar

Skylar, Age 11

My point is, that I relish it as my own success.  As a mother, I want nothing more than the best for her and for her to be the best, at everything.  I’ve never understood the theory that mothers and daughters clash because once a daughter comes along the focus is suddenly taken off of the women who had it on her since childhood.  Essentially that her mini-replacement has come along and she’s no longer the star of the show.

What?!  As a mother I truly don’t understand this.  And I think if you feel that way, you probably shouldn’t have had children at all, at least not in this stage of your life because it seems to me that if you aren’t able to put them before yourself you can’t have their best interest at heart.  I want my daughter to be prettier than me, stronger than me, smarter than me, and more successful.  I want her to have it ALL.

“I’ll bet she looks just like you at that age, Becky”, someone recently told me.  Ha!  She couldn’t have been more wrong.  I was gawky with no style,  big glasses, and a bad perm.  No, my daughter seems to have not had to endure the same awkward phase that plagued me from the ages of eight to fifteen.

Me Age 10

Me, age 10 with mid 90’s
style choker and Seinfeld Puffy Shirt.

Conversely, I’ve also endured comments related to my daughter’s looks as more of a consolation prize rather than a compliment.  When Miss Elliott was alive, I distinctly remember one person, upon learning of her terminal status remarked , “Well she sure is pretty, and you can love her anyway”.

WTF?

I mean, thank goodness she was pretty too, right…or there would be no reason to love my dying child as I love my heathy one.

photo 1

Miss Elliott, age 3 years 3 1/2 months

Okay, I know people don’t mean the stupid things they say to sound so ridiculously degrading, but honestly it’s so tiring that sometimes I would rather they just stay silent.  And if they simply can’t muster up that ability and feel compelled to have to say something, let it be a simple I’m sorry.

I know you can’t imagine.  I know you don’t know how I do it.  I know (insert your own meaningless platitude here), but none of it matters or changes the situation.  A simple I’m sorry, is really the only thing of value you have to give me anyway.

And for the record, Miss Elliott was pretty.  She had bright green eyes, milky smooth skin and hair far lighter than I could have ever imagined any of my children being born with (all three thanks to her Daddy’s Irish ancestry).  And I loved the hell out of her.  I still do.

And I wanted better for her, too.  Better than for me.  And do you know what?  She got it.  She knew nothing in her Three Short Years but unconditional love.  She never endured pain, rejection, or abuse.  She lived and died a perfect being with a pure soul.

These things, more than just our little girls being pretty should be what we celebrate as accomplishments in parenthood, and life.